Originally posted by fierogtlt1:My doctor was great and he said it is curable.
If you can afford it, knock something off your bucket list. For myself, the only thing I have left is to be a old and rich enough to run my own scholarship fund to my local College. Maybe 10 years, there are a few things that still have to line up.
I went to a surgical consult today about the port I will be getting put in my chest this week.Tommorrow I have a appointment to do a radiation consult and will be starting radiation and chemotherapy ASAP.The cancer is at the base of my tongue and has swollen out to the left of my neck.If it didn't swell I would have never even knew it was there at all.Crazy thing is about the tongue cancer is that I never a drinker or took up smoking my whole life.I was told today that I have to do at least 6 weeks of radiation 5 days a week and chemotherapy 1 day a week to help shrink the tumor in my neck.So hopefully everything works out in the next few weeks.
Damn man, I hate hearing things like this about people I interact with even if it is on a internet forum. You'll be in my prayers and I hope the chemo goes well and you recover quickly.
Well I got my surgery to put my port in my chest this morning.Go to see another doctor tomorrow for post op visit and then start my Radiation and Chemo next week.....Fun Fun....
Well I had to go back for some more information on my PET scan on Friday afternoon.The oncologist at the cancer center said there was some light up parts on my liver,so now they want to do a liver biopsy on me at the beginning of the week.Was also told that the cancer I have is already stage 4,so hopefully something helps weather it is the radiation or the chemo treatments.
What about the medical centers like Cancer treatment centers of America I see advertising all the time on TV, have you tried contacting one of them or are they just for rich people? Best wishes your way, stay strong!
My cancer has gone to stage 4 already so I will have to sell my Fiero and stop my Center Console Skeleton project.Plus if any donations happen they will be for my final expenses to keep my wife from going broke when I pass away.Thank You.
I cannot fathom being in your position Todd, but know that there are many here who are thinking of you tonight, praying for you, wishing and hoping for the best outcome possible. We are a family here at PFF and tho it may not seem so, none of us are ever alone in times such as these. Check your PMs please.
[This message has been edited by maryjane (edited 09-24-2014).]
I cannot fathom being in your position Todd, but know that there are many here who are thinking of you tonight, praying for you, wishing and hoping for the best outcome possible. We are a family here at PFF and tho it may not seem so, none of us are ever alone in times such as these.
I cannot fathom being in your position Todd, but know that there are many here who are thinking of you tonight, praying for you, wishing and hoping for the best outcome possible. We are a family here at PFF and tho it may not seem so, none of us are ever alone in times such as these. Check your PMs please.
Todd, no one wants to be given the news you've received. Not you or even your friends here. Back on September 8 you reported that your doctors felt the cancer was found in time and was treatable. That contradicts the most recent news. It just goes to show that doctors can be wrong. I will be praying for you and that the doctors were right in their first prognosis and wrong on this latest.
"Hello, my name is Todd and I have been dealing with a disease called Systemic Scleroderma for about 5 years and now I have been diagnosed with Squamous Cell Carcinoma. I will be having to get Radiation 5 times a week and Chemo 1 time a week. The copays are building and I am in fear of losing all I own. It is hard for me to ask for help but I have not other option. "
I got my second Radiation treatment today.It seemed to go pretty quick compared to the first visit.Just had to put my head and shoulders into a mold of myself that they made for me yesterday morning.The mold is just a mesh formed to my face and I can still see and breath through it the entire time the radiation is going on.
That is to keep you stationary. They're probably using focused beam radiation. That's what they did with me when I took my treatments. hey also made a template that fit onto the beam head that prevented a wide beam scatter. It was so that the beam hit the cancer and didn't damage any surrounding tissue.
Take it easy until you see how the treatment's going to affect you. Let the wife drive you anywhere you need to go. It can make you a little nauseous and tired for a day or two.
[This message has been edited by fierofool (edited 09-26-2014).]
That is to keep you stationary. They're probably using focused beam radiation. That's what they did with me when I took my treatments. hey also made a template that fit onto the beam head that prevented a wide beam scatter. It was so that the beam hit the cancer and didn't damage any surrounding tissue.
Take it easy until you see how the treatment's going to affect you. Let the wife drive you anywhere you need to go. It can make you a little nauseous and tired for a day or two.
She is great when it comes to all my doctors appointments.I always have them scheduled on her day off because she wants to be at every one of them to know what is going on with me at all times.I couldn't ask for anything better than that.It hasn't made me nauseous yet but starting next week I will be doing the 5 treatments of Radiation plus 1 Chemotherapy treatment on Friday's.It's does however make me very tired and week with no energy.She drives me to every appointment I have being the Pulmonologist,Rheumotologist or the Cancer Center. Thank You very much for the kind words Charlie.
Well......I got more bad news from my doctors visit today. They got back the results of my liver biopsy and that came back positive for cancer too.Plus some bone lesions on my lower back and my sternum came back positive for cancer.I will be starting a very aggressive chemotherapy treatments this Friday.My radiation is going good but now I will be receiving three different types of Chemotherapy to kick this thing in it's ass.......Thank You everybody for your support and kind words....... Todd Mullenaux. I'm thinking I might have to sell my Fiero soon to be able to pay for all my treatments.
[This message has been edited by fierogtlt1 (edited 10-08-2014).]
The Radiation treatments are totally kicking my ass.I have only been doing the treatments for two weeks and I can barely eat anything at all.My mouth and throat are constantly very dry and burning like fire.It is already this bad and I haven't even started my Chemotherapy treatments.I get to start chemo this Wednesday and I am very afraid that I will end up getting a feeding tube before too long.
